The world has changed more rapidly than any of us could have believed even a few weeks ago. Many are already working in places hard hit by COVID-19 and most will soon be doing that.
During this time, we all feel worried about how all the children that we treat with immunosuppressant medication will cope if they get Coronavirus. We get many phone calls and emails every day from worried families asking for advice.
So far, our knowledge on this is very scarce. Preliminary reports from e. g. Italy suggests that most children do well. There is an urgent need for more extensive and solid knowledge.
We have therefore launched a global study where we invite all pediatric nephrologists in the world to include data from anonymous children with COVID-19. This message has been sent out via Erknet, ESPN, IPNA and Pedneph. Please forward it to anyone that has not been included.
During the first two weeks of the study, one child has been included. We hope that this is a true finding but urge you all to include all children with immunosuppression and COVID-19. As soon as we have reasonable numbers, we will communicate them via email and later as a publication.
The survey can be accessed via the link below:
We are very grateful for your support with this project.
Your ERKNet team (Franz Schaefer & Tanja Wlodkowski) on behalf of Kjell Tullus, London and Marina Vivarelli, Rome, ERKNet WG for Immune Glomerulopathies Lars Pape, Hannover and Burkhard Toenshoff, Heidelberg, ERKNet WG for Pediatric Transplantation